Tag Archives: sickle cell

Hope in Her Veins: Battling Disease with Courage and the Kindness of Strangers 

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By Alex Keilty 

Nivia is a full-time Howard U. student, content creator, Girl Boss, and sickle cell advocate. On her best days she finds time to get it all done while receiving her treatment!

Propped up on a reclining hospital bed, tubes are sending her blood through a machine running nearby. The staff tending to her treatment are laughing with her as she tries to hold still while also chatting in FaceTime with colleagues about a documentary she is helping create about sickle cell. This is Nivia Charles, full-time university student, public speaker, campaign model and social media content creator, and future real estate developer. This 28-year-old woman has a lot going on…and she is also managing an excruciating condition, sickle cell disease. 

“Things can be challenging and can feel impossible,” says Nivia when reflecting on life with sickle cell. “But it’s something I live with and even thrive with…I can’t be 100 percent positive all the time but I can be optimistic more often than not.” 

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A Life Saved, Many Roles Played — Thanks to Blood Donors

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Calvanay Nunley is proud to call herself a mother and a sickle cell patient advocate

“I have really depended on blood transfusions my whole life,” says Calvanay Nunley. “If we didn’t have donors, I don’t know where I would be.”

Calvanay has relied on donors since she began receiving blood transfusions at the age of five. Blood transfusions are an important part of her treatment for sickle cell disease, the most common genetic blood disorder in the U.S. Sickle cell disease distorts soft and round red blood cells and turns them hard and crescent shaped. As a result, blood has difficulty flowing smoothly and carrying oxygen to the rest of the body, which may lead to severe pain, tissue and organ damage, anemia, and even strokes.

Without regular red blood cell exchanges every three weeks – known as apheresis – Calvanay might not be able to call herself a mother, nurse, children’s camp director, non-profit founder and sickle cell patient advocate. “I wear many hats,” she says.

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An A+ for a Platelet Donor

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Long-time Oakland blood donor Jasper Smith reached a 50-gallon donation milestone

Photo courtesy of Jasper Smith

Jasper Smith is a true humanitarian: he has been a blood and platelet donor for more than 13 years. On April 20, 2023, he achieved an incredible milestone with his 50-gallon platelet donation.

When we asked who inspired him to make his first donation, he shared the memory of his friend, Chaznee Brown. “She passed away some years ago from sickle cell anemia. She was hosting a blood drive for the Blue Tag program and asked if I would consider donating. At the time I had never done a blood donation, but I was down to help,” Jasper said.

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