Author Archives: Alex Keilty

Brought Back to Life by Blood Donations

Latrese Fowler with her son Cameron when he was young

When Latrese Fowler found out her newborn son didn’t inherit sickle cell disease, she was so overjoyed that she had a celebration. “We had a party when we found out he doesn’t have sickle cell. We went to Las Vegas!” she remembers.

Twenty-six years later, Latrese is mom to grownup Cameron, and you can hear the pride in her voice as she describes his job as a utility locator. She is grateful her son was spared a lifetime of pain and hundreds of hospital visits treating sickle cell disease and its complications. It’s an experience she knows about firsthand.

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Why Blood Donors Who are Black Matter: One Woman’s Lifesaving Connection to Donors

“After being sick I wanted to get out of the house and look normal,” Jenielle says

Growing up, Jenielle Tulloch didn’t understand why illness followed her when no one else around her seemed to suffer the same way. Pain came in waves, sudden and consuming. “A lot of times I felt like a burden to them,” she says about getting sick so often.

“It’s like you’re being stabbed multiple times, over and over, an internal throbbing pain like a heartbeat,” she says. These crises would send her to hospital. As a child she thought: “You aren’t going to make it past 30, you aren’t going to have kids.”

Fortunately, she did make it past the age of 30 and had two children of her own. As an adult she began to educate herself about sickle cell disease. And eventually she even came to appreciate how the experience shaped her.

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Hurricane Ian Anniversary: From Highway Patrol to Humanitarian Aid

American Red Cross volunteer Melody Heilmann

The woman, and many of her neighbors, had been eating only canned food and storing very limited perishables in coolers since a hurricane had hit their homes weeks before, American Red Cross volunteer Melody Heilmann says. She chokes up as she recalls the woman screaming at the top of her lungs with joy when she was told she qualified for financial assistance from the Red Cross, “Oh my god, I can get a refrigerator now!” The woman was one of many people that Melody helped while volunteering for the Red Cross three years ago during Hurricane Ian.

This assignment was one of eight times Melody has responded to a disaster with the Red Cross, including after the wildfires in Chico, Calif. and Lahaina, Hawaii. Arriving just two days after the catastrophic fires in Hawaii, Melody vividly recalls people who arrived at the shelter still covered in soot and missing their shoes because they lost them when they fled from the deadly blaze. Although it can be very sad to meet people at what might be the worst time of their lives, seeing how the Red Cross helps them is very rewarding.

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Hope in Her Veins: Battling Disease with Courage and the Kindness of Strangers 

By Alex Keilty 

Nivia is a full-time Howard U. student, content creator, Girl Boss, and sickle cell advocate. On her best days she finds time to get it all done while receiving her treatment!

Propped up on a reclining hospital bed, tubes are sending her blood through a machine running nearby. The staff tending to her treatment are laughing with her as she tries to hold still while also chatting in FaceTime with colleagues about a documentary she is helping create about sickle cell. This is Nivia Charles, full-time university student, public speaker, campaign model and social media content creator, and future real estate developer. This 28-year-old woman has a lot going on…and she is also managing an excruciating condition, sickle cell disease. 

“Things can be challenging and can feel impossible,” says Nivia when reflecting on life with sickle cell. “But it’s something I live with and even thrive with…I can’t be 100 percent positive all the time but I can be optimistic more often than not.” 

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A Life Saved, Many Roles Played — Thanks to Blood Donors

Calvanay Nunley is proud to call herself a mother and a sickle cell patient advocate

“I have really depended on blood transfusions my whole life,” says Calvanay Nunley. “If we didn’t have donors, I don’t know where I would be.”

Calvanay has relied on donors since she began receiving blood transfusions at the age of five. Blood transfusions are an important part of her treatment for sickle cell disease, the most common genetic blood disorder in the U.S. Sickle cell disease distorts soft and round red blood cells and turns them hard and crescent shaped. As a result, blood has difficulty flowing smoothly and carrying oxygen to the rest of the body, which may lead to severe pain, tissue and organ damage, anemia, and even strokes.

Without regular red blood cell exchanges every three weeks – known as apheresis – Calvanay might not be able to call herself a mother, nurse, children’s camp director, non-profit founder and sickle cell patient advocate. “I wear many hats,” she says.

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Trust and Care: The Story of a Red Cross Volunteer Flight Surgeon

“When patients come in, they automatically trust you when they see the Red Cross,” says Justin Nast, M.D., about the logo that is on his name tag. His American Red Cross badge identifies Dr. Nast as a volunteer flight surgeon entrusted with the care of U.S. Air Force aviators.

How did Dr. Nast become a Red Cross volunteer flight surgeon? Interestingly, he didn’t start his medical career planning to be a flight surgeon. In fact, he was an obstetrics and gynecology resident when he was recruited by the Air Force. (An ob/gyn is the medical specialty that encompasses pregnancy, childbirth, and the postpartum period, and the health of the female reproductive system.) After joining the armed forces, he spent eight years delivering babies and caring for the health of enlisted service women.

When the hospital he was stationed at in Germany was closing, he launched into a new career: aerospace medicine. Dr. Nast says it’s a growing branch of medicine.

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